{"id":2612,"date":"2024-12-10T21:47:55","date_gmt":"2024-12-10T20:47:55","guid":{"rendered":"https:\/\/www.arthrogrypose.fr\/p\/?page_id=2612"},"modified":"2024-12-10T23:12:39","modified_gmt":"2024-12-10T22:12:39","slug":"documentary-living-with-arthrogryposis-en","status":"publish","type":"page","link":"https:\/\/www.arthrogrypose.fr\/p\/documentary-living-with-arthrogryposis-en\/","title":{"rendered":"Documentary: Living with Arthrogryposis (en)"},"content":{"rendered":"\n
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Living with Arthrogryposis<\/a><\/figcaption><\/figure>\n\n\n\n
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In 2016, the association produced a 50-minute documentary titled \u00ab\u00a0Living with Arthrogryposis\u00a0\u00bb<\/em>, covering various medical and practical aspects.<\/p>\n\n\n\n

This film was funded and created by the Alliance Arthrogryposis association, which retains ownership. For any use (commercial or otherwise), prior written authorization must be obtained from the association:<\/p>\n\n\n\n

www.arthrogrypose.fr\/contact<\/a><\/p>\n\n\n\n

Exemption<\/strong> :<\/p>\n\n\n\n

For individuals affected by arthrogryposis, the association permits private screenings of the film, as well as copies for sharing with family members, friends, and caregivers, provided it remains within a private setting.<\/p>\n\n\n\n

Decision of the Board of Directors, 26\/05\/2016<\/em><\/p>\n\n\n\n

This film provides answers to your questions through testimonies from parents, children, and doctors. Watch it in its entirety; the table of contents below will help you revisit the topics that interest you the most.<\/p>\n\n\n\n

New in 2023:<\/strong> Subtitles are now available in French, as well as in English, German, Spanish, Italian, Arabic, Chinese, Hindi, Russian, Ukrainian, and more. While the French and English subtitles have been carefully proofread and corrected, translations into foreign languages were created using automated tools and may contain errors ! User Guide<\/em><\/a><\/p>\n\n\n\n

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Documentary: Living with Arthrogryposis<\/figcaption><\/figure> \n<\/div>\n\n\n\n
Table of Contents<\/summary>
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(click on a link to position directly in the video )\n
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\n\t\t THE ASSOCIATION’S ANNUAL WEEKEND<\/span>\t<\/a>
\n\t\t 00:00 introduction\t<\/a>
\n\t\t 00:31 arthrogryposis: the effects\t<\/a>
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\n\t\t THE DIAGNOSIS OF THE DISEASE<\/span><\/a>
\n\t\t 01:16 testimony from Matthieu and Amanda \t<\/a>
\n\t\t03:04 testimony from Alan and C\u00e9cile \t<\/a>
\n\t\t03:26 testimony from Sophie \t<\/a>
\n\t\t03:39 testimony from Philippe and Myriam \t<\/a>
\n\t\t03:50 testimony from St\u00e9phane and Ga\u00eblle \t<\/a>
\n\t\t04:08 testimony from Jean-Pierre and Marie (grandparents) \t<\/a>
\n\t\t04:28 testimony from Isabelle and Elodie \t<\/a>
\n\t\t04:56 testimony from St\u00e9phane and Ga\u00eblle \t<\/a>
\n\t\t05:21 testimony from Annie, arthrogryposis in the past <\/a>
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\n\t\tTHE BIRTH OF THE ASSOCIATION\t<\/span><\/a>
\n\t\t06:00 testimony from Adeline \t<\/a>
\n\t\t07:56 arthrogryposis: origin, evolution, and medical care\t<\/a>
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\n\t\tREFERENCE CENTER (Grenoble University Hospital)<\/span><\/a>
\n\t\t08:23 intervention by Pr Jacques GRIFFET (pediatric orthopedic surgeon)<\/a>
\n\t\t09:05 physiotherapy in the treatment of arthrogryposis\t<\/a>
\n\t\t09:14 testimony from a family \t<\/a>
\n\t\t09:40 testimony from Sophie and Emma \t<\/a>
\n\t\t10:13 testimony from St\u00e9phane and Ga\u00eblle\t<\/a>
\n\t\t10:29 testimony from Damien \t<\/a>
\n\t\t10:52 assessment at the reference center\t<\/a>
\n\t\t11:16 Pr Pierre-Simon JOUK: classification of arthrogryposis into 3 groups <\/a>
\n\t\t13:36 description of the assessment (intervention by Pr Pierre-Simon JOUK)\t<\/a>
\n\t\t14:42 occupational therapy in the treatment of arthrogryposis\t<\/a>
\n\t\t14:47 intervention by Anne-Sophie HUGUES (occupational therapist)\t<\/a>
\n\t\t15:41 intervention by Pr Jacques GRIFFET (pediatric orthopedic surgeon)\t<\/a>
\n\t\t16:26 intervention by Emmanuelle DUPRAZ (psychologist) \t<\/a>
\n\t\t17:15 intervention by Dr Klaus DIETERICH (geneticist)\t<\/a>
\n\t\t17:54 intervention by Pr Pierre-Simon JOUK (department of genetics and reproduction)\t<\/a>
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\n\t\tSCHOOLING\t<\/span><\/a>
\n\t\t18:37 intervention by Corinne (teacher Maya – kindergarten in Marseille)\t<\/a>
\n\t\t20:27 testimony from Damien \t<\/a>
\n\t\t20:38 testimony from Clarisse \t<\/a>
\n\t\t20:50 testimony from Emma \t<\/a>
\n\t\t21:10 testimony from Isabelle \t<\/a>
\n\t\t21:25 testimony from Sophie \t<\/a>
\n\t\t21:41 testimony from Jean-Pierre and Marie \t<\/a>
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\n\t\tRELATIONSHIPS WITH OTHERS\t<\/span><\/a>
\n\t\t22:07 testimony from Damien \t<\/a>
\n\t\t22:34 testimony from Clarisse \t<\/a>
\n\t\t22:42 testimony from Klervi \t<\/a>
\n\t\t22:54 testimony from Sophie \t<\/a>
\n\t\t23:01 testimony from Isabelle \t<\/a>
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\n\t\tPROFESSIONAL LIFE\t<\/span><\/a>
\n\t\t23:20 testimony from Marion \t<\/a>
\n\t\t24:43 intervention by Nicolas (L’Or\u00e9al)\t<\/a>
\n\t\t25:45 intervention by Ana\u00efs (L’Or\u00e9al)\t<\/a>
\n\t\t26:17 testimony from Emilie \t<\/a>
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\n\t\t28:42 RELATIONSHIP WITH THE DISEASE & PERSONAL DEVELOPMENT\t<\/span><\/a>
\n\t\t29:03 testimony from Emma \t<\/a>
\n\t\t29:12 testimony from Klervi \t<\/a>
\n\t\t29:26 testimony from Luan \t<\/a>
\n\t\t29:34 testimony from Clarisse \t<\/a>
\n\t\t29:43 testimony from Klervi \t<\/a>
\n\t\t29:50 testimony from Emilie \t<\/a>
\n\t\t30:22 testimony from Annie \t<\/a>
\n\t\t30:36 testimony from Jean-Luc\t<\/a>
\n\t\t30:51 intervention by Emmanuelle DUPRAZ (psychologist)\t<\/a>
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\n\t\t32:19 ACTIVITIES & LEISURE\t<\/span><\/a>
\n\t\t32:33 testimony from Fabien \t<\/a>
\n\t\t34:05 testimony from Marion \t<\/a>
\n\t\t35:38 testimony from Emilie \t<\/a>
\n\t\t35:57 testimony from Juliette \t<\/a>
\n\t\t36:13 testimony from Marion \t<\/a>
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\n\t\t36:19 LIVING WITH THE DISEASE\t<\/span><\/a>
\n\t\t36:33 testimony from Fanny \t<\/a>
\n\t\t39:38 testimony from Juliette \t<\/a>
\n\t\t43:04 testimony from Marie-Claude \t<\/a>
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\n\t\t43:24 ROLE OF THE ASSOCIATION\t<\/span><\/a>
\n\t\t43:25 the annual weekend (footage)\t<\/a>
\n\t\t44:29 the association’s goals (explanation by Marie-Claude)\t<\/a>
\n\t\t45:03 the scientific council \t<\/a>
\n\t\t46:03 the association’s publication: a little light in the eyes\t<\/a>
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\n\t\t46:46 DISABILITY & SOCIETY\t<\/span><\/a>
\n\t\t46:54 testimony from Marie-Claude \t<\/a>
\n\t\t47:24 testimony from Emilie \t<\/a>
\n\t\t47:43 testimony from Jean-Pierre and Marie \t<\/a>
\n\t\t47:51 testimony from Sophie \t<\/a>
\n\t\t48:02 testimony from Alan and C\u00e9cile \t<\/a>
\n\t\t48:27 testimony from St\u00e9phane and Ga\u00eblle \t<\/a>
\n\t\t48:38 testimony from Isabelle SADAT and Elodie \t<\/a>
\n\t\t49:01 testimony from Annie \t<\/a>
\n\t\t49:14 testimony from Marion \t<\/a>
\n\t\t49:30 testimony from Philippe and Myriam \t<\/a>
\n\t\t49:35 testimony from Jean-Luc \t<\/a>
\n\t\t49:53 testimony from Fanny \t<\/a>
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\n\t\t50:34 TRAILER (sponsors, acknowledgements, and production team)\t<\/span><\/a>
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\n \n Download the documentary\n <\/a>\n <\/div>\n<\/div>\n<\/div>\n\n\n\n