{"id":172,"date":"2021-10-20T10:34:02","date_gmt":"2021-10-20T08:34:02","guid":{"rendered":"https:\/\/www.arthrogrypose.fr\/p\/?page_id=172"},"modified":"2026-03-10T19:58:50","modified_gmt":"2026-03-10T18:58:50","slug":"bienvenue-a-lassociation-alliance-arthrogrypose","status":"publish","type":"page","link":"https:\/\/www.arthrogrypose.fr\/p\/bienvenue-a-lassociation-alliance-arthrogrypose\/","title":{"rendered":"Bienvenue \u00e0 l&rsquo;association Alliance Arthrogrypose"},"content":{"rendered":"\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/10\/Screenshot-at-2018-06-25-212857-1024x576.png\" alt=\"Famile arrivant au week-end de l'association\" class=\"wp-image-163\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/10\/Screenshot-at-2018-06-25-212857-980x551.png 980w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/10\/Screenshot-at-2018-06-25-212857-480x270.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><\/figure>\n\n\n\n<p id=\"block-a73ee323-7784-41d0-b3d0-5b0e3e021d5a\">Bienvenue sur le <strong>site 2022 de l&rsquo;Association Alliance Arthrogrypose<\/strong>, bienvenue sur votre site.<\/p>\n\n\n\n<p>L&rsquo;association a \u00e9t\u00e9 cr\u00e9\u00e9e en 2005 et a pour buts :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>De permettre aux personnes atteintes d\u2019arthrogrypose et leur entourage d\u2019\u00e9changer leurs exp\u00e9riences<\/li>\n\n\n\n<li>D\u2019apporter une aide technique et morale aux familles confront\u00e9es \u00e0 l\u2019arthrogrypose<\/li>\n\n\n\n<li>De contribuer \u00e0 l\u2019effort de recherche m\u00e9dicale et \u00e0 l\u2019am\u00e9lioration des pratiques de soins relatifs \u00e0 l\u2019arthrogrypose<\/li>\n\n\n\n<li>De favoriser la collecte d\u2019informations et leur diffusion aupr\u00e8s des personnes concern\u00e9es et aupr\u00e8s du corps m\u00e9dical<\/li>\n\n\n\n<li>De favoriser et d\u2019entretenir les liens avec les associations relatives \u00e0 l&rsquo;\u201d arthrogrypose \u201d \u00e0 l\u2019\u00e9tranger<\/li>\n<\/ul>\n\n\n\n<p id=\"block-c4b2de4b-fa66-4e3f-8431-6f405a0e1ebd\">En 2022, L&rsquo;Alliance Arthrogrypose est la seule association francophone relative \u00e0 l&rsquo;Arthrogrypose..<\/p>\n\n\n\n<p id=\"block-c4b2de4b-fa66-4e3f-8431-6f405a0e1ebd\">Nous esp\u00e9rons que vous trouverez sur ce site les informations que vous recherchez concernant la maladie rare Arthrogrypose, et ses cons\u00e9quences.<\/p>\n\n\n\n<p id=\"block-61294c3a-37a0-4fcf-a02d-e97aaa0d8fca\">M\u00eame si vous n&rsquo;\u00eates pas adh\u00e9rent \u00e0 l&rsquo;Association, vous trouverez les <strong>informations essentielles<\/strong> sur la maladie, les <strong>coordonn\u00e9es du CHU Centre de R\u00e9f\u00e9rence<\/strong>, quelques articles m\u00e9dicaux et des t\u00e9moignages.<\/p>\n\n\n\n<p id=\"block-204c7b5a-0e1a-4071-9a4b-e438677ec2b4\">Vous pouvez vous inscrire \u00e0 la <strong>Lettre d&rsquo;information<\/strong> pour \u00eatre tenu au courant de l&rsquo;\u00e9volution des informations publi\u00e9es sur ce site.<\/p>\n\n\n\n<p id=\"block-f575a703-9b6e-44b0-a09a-ace00a20724c\"><strong>Si vous adh\u00e9rez<\/strong>, vous renforcez notre association des personnes concern\u00e9es par l&rsquo;Arthrogrypose. <br>Vous disposerez d\u2019un acc\u00e8s \u00e0 l&rsquo;espace membres qui vous est r\u00e9serv\u00e9 (biblioth\u00e8que de documents internes, informations sur la vie de l&rsquo;association, autres t\u00e9moignages, gazettes internes, documents de nos rencontres, photos, vid\u00e9os&#8230; ).<br>Vous pourrez aussi acc\u00e9der \u00e0 notre mailing liste interne. N&rsquo;h\u00e9sitez donc pas <a href=\"https:\/\/www.arthrogrypose.fr\/p\/adherer-donner\/\">\u00e0 adh\u00e9rer<\/a> !<\/p>\n\n\n\n<p id=\"block-03420dd9-ef6b-488f-b71c-4e8c15d450a1\">N&rsquo;h\u00e9sitez pas \u00e0 prendre contact avec nous par notre<a href=\"https:\/\/www.arthrogrypose.fr\/contacter\/\"> page de contact<\/a>.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"block-4f0730db-3e0b-47ac-8d37-22519cfb1b4d\">Notre histoire<\/h2>\n\n\n\n<p>Tout a commenc\u00e9 \u00e0 la naissance de Luan, le <strong>6 ao\u00fbt 2002<\/strong>, lorsqu&rsquo;Adeline Bozier s\u2019est retrouv\u00e9e seule, isol\u00e9e avec sa famille, face \u00e0 l\u2019arthrogrypose qui touchait son fils.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"146\" height=\"126\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/a7-adeline-luan.png\" alt=\"\" class=\"wp-image-868\"\/><\/figure>\n\n\n\n<p>L\u2019un des exutoires d\u2019Adeline a \u00e9t\u00e9 de cr\u00e9er un site internet personnel, <a href=\"http:\/\/www.arthrogrypose.com\" target=\"_blank\" rel=\"noreferrer noopener\">www.arthrogrypose.com<\/a> (dont une copie se trouve <a href=\"https:\/\/www.arthrogrypose.fr\/com\/\" target=\"_blank\" rel=\"noreferrer noopener nofollow\">ici https:\/\/www.arthrogrypose.fr\/a\/com\/<\/a> ) d\u00e9di\u00e9 \u00e0 son fils, \u00ab Luan et l\u2019arthrogrypose\u00bb afin d\u2019y retracer la vie de Luan, ses progr\u00e8s, ses \u00e9preuves et de centraliser les maigres parutions m\u00e9dicales concernant l\u2019arthrogrypose.<\/p>\n\n\n\n<p>Des adultes atteints par l\u2019arthrogrypose et des parents qui, tout comme Adeline, se sentaient si isol\u00e9s et en mal d\u2019information, l\u2019ont contact\u00e9e via internet. Le r\u00e9seau a grandit, les \u00e9changes se sont multipli\u00e9s. Un r\u00e9seau est n\u00e9. Il s&rsquo;est renforc\u00e9 avec son passage \u00e0 l&rsquo;\u00e9mission TV en 2003 : \u00ab\u00a0Les Maternelles\u00a0\u00bb<\/p>\n\n\n\n<p>Adeline a port\u00e9 seule ce r\u00e9seau pendant 3 ans. Elle a \u00e9toff\u00e9 son site par les t\u00e9moignages des personnes qui la contactaient. De nombreux projets ont germ\u00e9 dans son esprit. Rien n\u2019avait jamais \u00e9t\u00e9 fait autour de l\u2019arthrogrypose en France ou en Francophonie..<\/p>\n\n\n\n<p>Puis il y eu le d\u00e9clic : la venue du Maroc d\u2019un petit gar\u00e7on de 3 ans, Sami, et de sa Maman en 2005. Adeline et sa famille les ont h\u00e9berg\u00e9s, accompagn\u00e9s au centre de Palavas-les-Flots afin que Sami puisse b\u00e9n\u00e9ficier d\u2019un bilan orthop\u00e9dique complet (qu\u2019elle a obtenu gratuitement !). Sami est reparti 3 semaines plus tard avec son dossier m\u00e9dical sous le bras et du mat\u00e9riel plein ses valises (attelles, verticalisateur\u2026). Sa Maman, qui assure seule les soins, a re\u00e7u une formation par des kin\u00e9s. Sami reviendra peut-\u00eatre pour de la chirurgie.<br>Adeline s\u2019est alors rendue \u00e0 l\u2019\u00e9vidence, elle ne pourra pas assumer seule ce r\u00e9seau, et qu&rsquo;il fallait fonder une association.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"542\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Logo-scan-initial-1024x542.jpg\" alt=\"\" class=\"wp-image-909\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Logo-scan-initial-1024x542.jpg 1024w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Logo-scan-initial-980x518.jpg 980w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Logo-scan-initial-480x254.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><figcaption class=\"wp-element-caption\">Le premier logo con\u00e7u et dessin\u00e9 par la s\u0153ur d&rsquo;Adeline (2006)<\/figcaption><\/figure>\n\n\n\n<p>Adeline a organis\u00e9 une r\u00e9union en Bourgogne (dans la maison paternelle gracieusement pr\u00eat\u00e9e pour l\u2019occasion) afin de d\u00e9finir les statuts d\u2019une association et d\u2019\u00e9lire un bureau. \u00c9taient pr\u00e9sents 3 adultes atteints d\u2019arthrogrypose et 6 couples de parents avec leurs enfants, eux-m\u00eames atteints.<br><\/p>\n\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"812\" height=\"545\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Assemblee-Fondatrice-2005.jpg\" alt=\"Assembl\u00e9e Fondatrice 2005\" class=\"wp-image-725\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Assemblee-Fondatrice-2005.jpg 812w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Assemblee-Fondatrice-2005-480x322.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 812px, 100vw\" \/><figcaption class=\"wp-element-caption\">L\u2019association Alliance Arthrogrypose est n\u00e9e le <strong>30 octobre 2005<\/strong>.<\/figcaption><\/figure>\n\n\n\n<p>La cr\u00e9ation de l&rsquo;association a \u00e9t\u00e9 l&rsquo;occasion de passer une seconde fois \u00e0 l&rsquo;\u00e9mission \u00ab\u00a0Les maternelles\u00a0\u00bb<\/p>\n\n\n\n<figure class=\"wp-block-video\"><video controls poster=\"https:\/\/www.arthrogrypose.fr\/p\/VivreAvec\/video\/Arthrogrypose-Maternelles2006(LD).jpg\" src=\"https:\/\/www.arthrogrypose.fr\/p\/VivreAvec\/video\/Arthrogrypose-Maternelles2006(LD).mp4\"><\/video><figcaption class=\"wp-element-caption\">Les maternelles en 2006<\/figcaption><\/figure>\n\n\n\n<p>Adeline ne s\u2019est pas pr\u00e9sent\u00e9e au poste de Pr\u00e9sidente, voulant passer le flambeau et responsabiliser les membres de la toute nouvelle association. Pari gagn\u00e9, Alliance Arthrogrypose continue sa vie depuis&#8230;<\/p>\n\n\n\n<p><\/p>\n\n\n\n<figure class=\"wp-block-video\"><video controls poster=\"https:\/\/www.arthrogrypose.fr\/p\/VivreAvec\/video\/Vivreavec1280_3-Adeline.jpg\" src=\"https:\/\/www.arthrogrypose.fr\/p\/VivreAvec\/video\/Vivreavec1280_3-Adeline.mp4\"><\/video><figcaption class=\"wp-element-caption\">La fondation de l&rsquo;association : rompre l&rsquo;isolement<\/figcaption><\/figure>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<p><\/p>\n<\/div>\n\n\n\n<p>Quinze ans apr\u00e8s, les al\u00e9as et les soucis de la vie ont \u00e9parpill\u00e9 la plupart des membres fondateurs, mais d&rsquo;autres g\u00e9n\u00e9reux b\u00e9n\u00e9voles ont pris la succession au sein du Conseil d&rsquo;Administration et permettent \u00e0 l&rsquo;association de continuer et d\u00e9velopper ses activit\u00e9s !<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"521\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Site-AAA-2006-1024x521.png\" alt=\"\" class=\"wp-image-915\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Site-AAA-2006-1024x521.png 1024w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Site-AAA-2006-980x498.png 980w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/12\/Site-AAA-2006-480x244.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><figcaption class=\"wp-element-caption\">Premier site de l&rsquo;association, cr\u00e9\u00e9 en 2006<\/figcaption><\/figure>\n\n\n\n<p>L&rsquo;association reste une petite association, oscillant entre 50 et 100 adh\u00e9rents, <strong>sans salari\u00e9<\/strong>,  anim\u00e9e par une <strong>dizaine de b\u00e9n\u00e9voles<\/strong>.<br>Malgr\u00e9 ces petits moyens, elle assure :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>une <strong>r\u00e9union annuelle nationale<\/strong> des personnes atteintes et leur famille,  de 48h sur 3 jours, pendant les vacances de la Toussaint, regroupant une centaine de participants, avec des \u00e9changes, des conf\u00e9rences et des t\u00e9moignages,<\/li>\n\n\n\n<li>la publication du site de l&rsquo;association :  <a href=\"https:\/\/www.arthrogrypose.fr\">www.arthrogrypose.fr<\/a>, (en 2006, puis 2022)<\/li>\n\n\n\n<li>la publication de <strong>deux livrets<\/strong> pour enfants et pour adultes, ainsi qu&rsquo;une bande dessin\u00e9e,<\/li>\n\n\n\n<li>la r\u00e9alisation du <strong>documentaire \u00ab\u00a0Vivre Avec l&rsquo;Arthrogrypose\u00a0\u00bb<\/strong> (en 2015),<\/li>\n\n\n\n<li>l&rsquo;organisation d&rsquo;un <strong>Conseil Scientifique annuel<\/strong>, depuis 2008, avec la participation d\u00e9terminante du Centre de r\u00e9f\u00e9rence,<\/li>\n\n\n\n<li>l&rsquo;\u00e9dition de <strong>gazettes<\/strong> depuis 2010, regroupant articles et t\u00e9moignages autour de la gazette,<\/li>\n\n\n\n<li>une <strong>biblioth\u00e8que de livres<\/strong> autour de l&rsquo;arthrogrypose et du handicap,<\/li>\n\n\n\n<li>une <strong>m\u00e9diath\u00e8que de documentaires, conf\u00e9rences et t\u00e9moignages<\/strong> concernant l&rsquo;arthrogrypose,<\/li>\n\n\n\n<li>une <strong>cellule de contact<\/strong> pour r\u00e9pondre aux questions,<\/li>\n\n\n\n<li>une <strong>cellule de recherche de dons<\/strong>, pour financer l&rsquo;association,<\/li>\n\n\n\n<li>une mailing liste pour \u00e9changer les messages d&rsquo;amiti\u00e9s&#8230;<\/li>\n<\/ul>\n\n\n\n<p><\/p>\n\n\n\n<p class=\"has-text-align-center\">Envie de vous engager ? Envie d&rsquo;en profiter ? <a href=\"\/adherer\/\">Rejoignez-nous !<\/a><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/11\/cmpglodlenpkbgmc-1024x576.png\" alt=\"\" class=\"wp-image-396\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/11\/cmpglodlenpkbgmc-1024x576.png 1024w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/11\/cmpglodlenpkbgmc-980x551.png 980w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2021\/11\/cmpglodlenpkbgmc-480x270.png 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1024px, 100vw\" \/><figcaption class=\"wp-element-caption\">WE Rencontre 2021 (demi effectif covid&#8230;)<\/figcaption><\/figure>\n\n\n\n<p><\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"galerie-des-president-e-s\">Galerie des Pr\u00e9sident(e)s<\/h2>\n\n\n\n<div id=\"GaleriePresidents\" class=\"wp-block-group portrait34 is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/Laure-Boquillon-2006-225x300.png\" alt=\"\" class=\"wp-image-1609\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/Laure-Boquillon-2006-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/Laure-Boquillon-2006.png 432w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Laure Boquillon<br>2005-2007<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/annie.pluntz-225x300.png\" alt=\"\" class=\"wp-image-1610\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/annie.pluntz-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/annie.pluntz.png 299w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Annie Pluntz<br>2007-2010<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/MarieClaude.Lesne_-225x300.png\" alt=\"\" class=\"wp-image-1611\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/MarieClaude.Lesne_-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/03\/MarieClaude.Lesne_.png 252w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Marie-Claude Lesne<br>2011-2016<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"228\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/president.png\" alt=\"\" class=\"wp-image-1271\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Christophe Michels <br>2016-2019<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"236\" height=\"321\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/vice-president.png\" alt=\"\" class=\"wp-image-1269\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/vice-president.png 236w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/vice-president-221x300.png 221w\" sizes=\"(max-width: 236px) 100vw, 236px\" \/><figcaption class=\"wp-element-caption\">Gregory Kaegeler<br>2019-2020<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"400\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Christophe.Michels23.png\" alt=\"\" class=\"wp-image-2584\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Christophe.Michels23.png 300w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Christophe.Michels23-225x300.png 225w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><figcaption class=\"wp-element-caption\">Christophe Michels <br>2020-2025<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"432\" height=\"577\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2025\/11\/Alexis.Sarlat.25.png\" alt=\"\" class=\"wp-image-2723\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2025\/11\/Alexis.Sarlat.25.png 432w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2025\/11\/Alexis.Sarlat.25-225x300.png 225w\" sizes=\"(max-width: 432px) 100vw, 432px\" \/><figcaption class=\"wp-element-caption\">Alexis Sarlat <br>2025-<\/figcaption><\/figure>\n<\/div>\n\n\n\n<p><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<h2 class=\"wp-block-heading clearBoth\" id=\"block-6998d4fb-0f5b-43ea-8856-04022aa082e2\">Galerie des Secr\u00e9taires<\/h2>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\"><\/div>\n<\/div>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<div id=\"GaleriePresidents\" class=\"wp-block-group portrait34 is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Eric-Henry2-2006-PhotoRoom1-225x300.png\" alt=\"\" class=\"wp-image-2046\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Eric-Henry2-2006-PhotoRoom1-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Eric-Henry2-2006-PhotoRoom1.png 421w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">\u00c9ric Henry<br>2005-2007<br><\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"223\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/3090-A04_Jean-Pierre_Masson-PhotoRoom-223x300.png\" alt=\"\" class=\"wp-image-2050\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Jean-Pierre Masson<br>2007-2010<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"224\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Juliette-PhotoRoom-224x300.png\" alt=\"\" class=\"wp-image-2049\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Juliette Lesne<br>2010-2012<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"228\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire-adjoint-228x300.png\" alt=\"\" class=\"wp-image-1267\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire-adjoint-228x300.png 228w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire-adjoint.png 259w\" sizes=\"(max-width: 228px) 100vw, 228px\" \/><figcaption class=\"wp-element-caption\">Philippe Duvivier<br>2012-2018<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire-225x300.png\" alt=\"\" class=\"wp-image-1263\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/secretaire.png 300w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Christine Fauchy<br>2018-2024<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"221\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/jean-luc.duvivier-221x300.png\" alt=\"\" class=\"wp-image-2578\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/jean-luc.duvivier-221x300.png 221w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/jean-luc.duvivier.png 239w\" sizes=\"(max-width: 221px) 100vw, 221px\" \/><figcaption class=\"wp-element-caption\">Jean-Luc Duvivier<br>2024-24<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Philippe.Duvivier23-225x300.png\" alt=\"\" class=\"wp-image-2597\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Philippe.Duvivier23-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Philippe.Duvivier23.png 300w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Philippe Duvivier<br>2024-2025<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"226\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2026\/03\/sara.idouahmane25-226x300.png\" alt=\"\" class=\"wp-image-2790\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2026\/03\/sara.idouahmane25-226x300.png 226w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2026\/03\/sara.idouahmane25.png 434w\" sizes=\"(max-width: 226px) 100vw, 226px\" \/><figcaption class=\"wp-element-caption\">Sara Idouahmane<br>2025-<\/figcaption><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\">\n<h2 class=\"wp-block-heading clearBoth\">Galerie des Tr\u00e9sori\u00e8res<\/h2>\n<\/div>\n\n\n\n<p><\/p>\n\n\n\n<div id=\"GaleriePresidents\" class=\"wp-block-group portrait34 is-layout-flow wp-block-group-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"223\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Claudine-Schreiber3-PhotoRoom-223x300.png\" alt=\"\" class=\"wp-image-2048\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Claudine Bernhard-Schreiber<br>2005-2011<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"224\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Isabelle-Passot-PhotoRoom-224x300.png\" alt=\"\" class=\"wp-image-2047\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Isabelle Passot<br>2011-2012<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"224\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/06\/Juliette-PhotoRoom-224x300.png\" alt=\"\" class=\"wp-image-2049\" style=\"width:100px\"\/><figcaption class=\"wp-element-caption\">Juliette Lesne<br>2013-2014<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"234\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/tresoriere-234x300.png\" alt=\"\" class=\"wp-image-1270\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/tresoriere-234x300.png 234w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2022\/01\/tresoriere.png 257w\" sizes=\"(max-width: 234px) 100vw, 234px\" \/><figcaption class=\"wp-element-caption\">Patricia Duvivier<br>2014-2022<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image alignleft size-medium is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Dominique.Kegelaer23-225x300.png\" alt=\"\" class=\"wp-image-2587\" style=\"width:100px\" srcset=\"https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Dominique.Kegelaer23-225x300.png 225w, https:\/\/www.arthrogrypose.fr\/p\/wp-content\/uploads\/2024\/12\/Dominique.Kegelaer23.png 300w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><figcaption class=\"wp-element-caption\">Dominique Kegelaer <br>2022-<br><\/figcaption><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-group is-layout-flow wp-block-group-is-layout-flow\"><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Bienvenue sur le site 2022 de l&rsquo;Association Alliance Arthrogrypose, bienvenue sur votre site. L&rsquo;association a \u00e9t\u00e9 cr\u00e9\u00e9e en 2005 et a pour buts : En 2022, L&rsquo;Alliance Arthrogrypose est la seule association francophone relative \u00e0 l&rsquo;Arthrogrypose.. Nous esp\u00e9rons que vous trouverez sur ce site les informations que vous recherchez concernant la maladie rare Arthrogrypose, et [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"","_et_gb_content_width":"","inline_featured_image":false,"footnotes":""},"class_list":["post-172","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/pages\/172","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/comments?post=172"}],"version-history":[{"count":18,"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/pages\/172\/revisions"}],"predecessor-version":[{"id":2792,"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/pages\/172\/revisions\/2792"}],"wp:attachment":[{"href":"https:\/\/www.arthrogrypose.fr\/p\/wp-json\/wp\/v2\/media?parent=172"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}